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Gender identity aligment with ICD-11
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The title of the proposal

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Update or Revision Proposal: This field shows whether the proposal suggests an update that can be achieved in the usual ICD update cycle or whether it is made for the ICD-11 revision.

Primary Code affected: The primary ICD cide affected by this proposal. (See also the section: Selecting where to attach the proposal in the user's guide)

Secondary Codes affected: See the section: Selecting where to attach the proposal from the User's guide. Volumes Affected: The list of ICD volumes that will be changed as a result of this proposal.

Proposal Type: The type of this proposal. The originator selects this from a predefined list

Change Reason: Similar to above, the originator selects this from a predefined list

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Rationale: This field includes the information on why this change is necessary.

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Proposal ID : 2272  -  Proposal State : In Open Discussion Layer Proposal for Update

Originator : Robert Jakob  -  Last Update made by : Robert Jakob

Creation Date : 14-Apr-2016 10:06 CET  -  Last Update : 21-Mar-2017 13:11 CET

Previously Discussed in the group(s):

Primary Code Affected : F64

Secondary Codes Affected : Z70-Z76

Volumes Affected : 1,3

Proposal Type : Deletion of code

Change Reason : Need to reflect a change in clinical knowledge

Detailed Description
Volume 1 - Tabular List

List of three-character categories

Disorders of adult personality and behaviour (F60-F69)
F60     Specific personality disorders
F61     Mixed and other personality disorders
F62     Enduring personality changes, not attributable to brain damage and disease
F63     Habit and impulse disorders
F64     Gender identity disorders
F65     Disorders of sexual preference
F66     Psychological and behavioural disorders associated with sexual development and      orientation
F68     Other disorders of adult personality and behaviour
F69     Unspecified disorder of adult personality and behaviour
.....
Persons encountering health services in other circumstances (Z70-Z767)
Z70     Counselling related to sexual attitude, behaviour and orientation
Z71     Persons encountering health services for other counselling and medical advice, not elsewhere classified
Z72     Problems related to lifestyle
Z73     Problems related to life-management difficulty
Z74     Problems related to care-provider dependency
Z75     Problems related to medical facilities and other health care
Z76     Persons encountering health services in other circumstances
Z77     Gender incongruence


Tabular list of inclusions and four-character subcategories

F64 Gender identity disorders

F64.0 Transsexualism
A desire to live and be accepted as a member of the opposite sex, usually accompanied by a sense of discomfort with, or inappropriateness of, one's anatomic sex, and a wish to have surgery and hormonal treatment to make one's body as congruent as possible with one's preferred sex.

F64.1 Dual-role transvestism
The wearing of clothes of the opposite sex for part of the individual's existence, in order to enjoy the temporary experience of membership of the opposite sex, but without any desire for a more permanent sex change or associated surgical reassignment, and without sexual excitement accompanying the cross-dressing.
Gender identity disorder of adolescence or adulthood, nontranssexual type
Excl.: fetishistic transvestism (F65.1)

F64.2 Gender identity disorder of childhood
A disorder, usually first manifest during early childhood (and always well before puberty), characterized by a persistent and intense distress about assigned sex, together with a desire to be (or insistence that one is) of the other sex. There is a persistent preoccupation with the dress and activities of the opposite sex and repudiation of the individual's own sex. The diagnosis requires a profound disturbance of the normal gender identity; mere tomboyishness in girls or girlish behaviour in boys is not sufficient. Gender identity disorders in individuals who have reached or are entering puberty should not be classified here but in F66.-.
Excl.: egodystonic sexual orientation (F66.1)
           sexual maturation disorder (F66.0)

F64.8 Other gender identity disorders

F64.9 Gender identity disorder, unspecified
Gender-role disorder NOS


F93.8 Other childhood emotional disorders
  Identity disorder
  Overanxious disorder
Excl.: gender identity disorder of childhood (F64.2Z77.1)

...
Chapter XXI
Factors influencing health status and contact with health services (Z00-Z99)

...

Persons encountering health services in other circumstances (Z70-Z767)
...

Z76.9 Person encountering health services in unspecified circumstances

Z77  Gender incongruence
Gender incongruence is characterized by a marked and persistent incongruence between an individual’s experienced gender and the assigned sex. Gender variant behaviour and preferences alone are not a basis for assigning the diagnoses in this group.

Z77.0  Gender incongruence of adolescence and adulthood
Gender incongruence of adolescence and adulthood is characterized by a marked and persistent incongruence between an individual´s experienced gender and the assigned sex, which often leads to a desire to ‘transition’, in order to live and be accepted as a person of the experienced gender, through hormonal treatment, surgery or other health care services to make the individual´s body align, as much as desired and to the extent possible, with the experienced gender. The diagnosis cannot be assigned prior the onset of puberty. Gender variant behaviour and preferences alone are not a basis for assigning the diagnosis.

Gender identity disorder of adolescence or adulthood, nontranssexual type

Excl.: fetishistic transvestism (F65.1)

Z77.1  Gender incongruence of childhood
Gender incongruence of childhood is characterized by a marked incongruence between an individual’s experienced/expressed gender and the assigned sex in pre-pubertal children. It includes a strong desire to be a different gender than the assigned sex; a strong dislike on the child’s part of his or her sexual anatomy or anticipated secondary sex characteristics and/or a strong desire for the primary and/or anticipated secondary sex characteristics that match the experienced gender; and make-believe or fantasy play, toys, games, or activities and playmates that are typical of the experienced gender rather than the assigned sex. The incongruence must have persisted for about 2 years, and cannot be diagnosed before age 5. Gender variant behaviour and preferences alone are not a basis for assigning the diagnosis.

Excl.: egodystonic sexual orientation (F66.1)
          sexual maturation disorder (F66.0)

Z77.8  Other specified gender incongruence

Z77.9  Gender incongruence, unspecified


Volume 3 - Alphabetical Index

Deviation
...
- sexual F65.9
...
- - transvestism F64.1Z77.0

Disorder (of)
- see also Disease
...
– gender-identity or -role F64.9Z77.9

– – childhood F64.2Z77.1

– – effect on relationship F66.2

– – egodystonic F66.1

– – of adolescence or adulthood (nontranssexual)F64.1Z77.0

– – specified NEC F64.8Z77.8

– – uncertainty F66.0

.....

– psychosexual F65.9

– – development F66.9

– – – specified NEC F66.8

–– identity, of childhood F64.2Z77.1



Dysphonia R49.0

– functional F44.4

– hysterical F44.4

– psychogenic F44.4

– spastica J38.3

Dysphoria, gender in children Z77.1

Dyspituitarism E23.3


Gemistocytoma

– specified site - see Neoplasm, malignant

– unspecified site C71.9

Gender incongruence Z77.9

– adolescence Z77.0

– adulthood Z77.0

– childhood Z77.1

General, generalized - see condition


Psychosexual identity disorder of childhood F64.2Z77.1


Transsexualism F64.0Z77.0


Transvestism, transvestitism (dual-role)F64.1Z77.0
– fetishistic F65.1




Archived Versions
21/03/2017 Robert Jakob
02/03/2017 Paula Tonel
26/01/2017 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Lori Moskal
28/09/2016 Paula Tonel
27/05/2016 Robert Jakob
14/04/2016 Robert Jakob
14/04/2016 Robert Jakob
Rationale
Current categories in the chapter 5 need to be removed and reinstated with edits as a new category Z77.
Gender incongruence coded in the section on behavioural conditions in the chapter on menatl and behavioural disorders was giving the wrong impression that gender incongruence is linked to mental health.

URC (Nov 15, 2016): this proposal was accepted in 2016

19 March 2017 WHO withdraws the proposal:

Reactions against this proposal were addressed to WHO by:
  • Global Action for Trans Equality (GATE)
  • Grupo Cultura e Sexualidade (CuS)
  • Akahata Equipo de Trabajo en Sexualidades y Generos
  • Transgender Europe (TGEU)
  • STP, International Campaign Stop Trans Pathologization
  • International Lesbian, Gay, Bisexual, Trans and Intersex Association (ILGA)
  • Kyrgyz Indigo
  • Trans*Coalition in the Post-Soviet Space
  • Asia Pacific Transgender Network (APTN)
  • Iranti-Org
Conversations were conducted with the different parties indicating the options for moving the relevant categories out of the chapter V of ICD-10, meaning to move the relevant entities to one of the following chapters:
1.       Endocrine, nutritional, and metabolic diseases;
2.       Diseases of the genitourinary system; or
3.       Factors influencing health status and contact with health services.

It was further clarified that, although related, updates to ICD-10 are undertaken separately and distinctly from the process of revision leading towards ICD-11.  Updates to ICD-10 can only be undertaken within the existing structure of ICD-10. Updates to ICD-10 are not linked to the revision process for developing ICD-11, nor do they influence the status of proposals for ICD-11. Moreover, any decisions proposed by the Update and Revision Committee to update ICD-10, only become valid with their publication.

The consultation process to date has shown broad agreement that, with regard to the categories related to gender incongruence, moving them out of the “F” Chapter can help to de-psychopathologize the conditions.  Within the revision process for developing ICD-11, the proposed development of a new chapter of Conditions Related to Sexual Health provides a category in which the Gender Incongruence categories can be placed separately from mental health conditions, and conditions related to endocrine or urogenital diseases.
It was reiterated that the existing structure of ICD-10 does not allow the creation of this new chapter as part of any update to ICD-10, and that any change within ICD-10 at this stage does not have any impact on the proposal for a new chapter that was developed together for ICD-11. With the approval and release of ICD-11, the Gender Incongruence categories can be placed in the new chapter entitled Conditions Related to Sexual Health”.

Based upon multiple discussions and the feedback WHO has received from numerous stakeholders, it appears that none of these options can be considered favourably.
The decision of WHO, therefore, is to withdraw the proposed change to ICD-10; the update will not be published and the categories will remain within the chapter on Mental and Behavioural Disorders in ICD-10.

This decision does not exclude submission of new proposals.

Voting
Comments
06-Jul-2016 21:37 CET by Kristy Mabon
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Yes
We agree in principle; however, the proposal requires the addition of descriptive notes, inclusions and exclusions to ensure all the conditions that have been removed from F64 are properly classified to Z77. Also, indexing required.
12-Jul-2016 15:45 CET by Lars Age Johansson
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Yes
Agree with Kristy.
13-Jul-2016 01:02 CET by Olafr Steinum
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Yes
Agree in principle
13-Jul-2016 08:26 CET by Ulrich Vogel
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Yes
Agree with Kristy.
14-Jul-2016 11:58 CET by Hazel Brear
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Can't Decide
Agree in principle but would expect the deleted terms to be retained as inclusions in the new category ( the terminology is still in use. There is some index work to be done.
14-Jul-2016 14:29 CET by Kyung Seo
Comment attached to the vote of the user for Round 1 of year 2016. Voted:Can't Decide
According to Korean psychologists, they still consider Gender incongruence as mental and behavior disorder to need treatments like medication, surgery.
We think that F64 should be retained like DSV-5 ver.2014.
11-Aug-2016 14:58 CET by Ulrich Vogel
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Yes
Still agree in principle, Hazel has a point with the "old" terminology that is still in use. Further work on the tabular and index is needed.
25-Aug-2016 20:43 CET by Olafr Steinum
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Yes
Agree in principle, but agree with others that further index work to be done
30-Aug-2016 20:55 CET by Kristy Mabon
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Can't Decide
Agree in principle but require seeing the recommended changes from Round I comments before providing a final vote.
01-Sep-2016 10:26 CET by Lars Age Johansson
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Yes
Agree in principle, but we need to see an updated proposal.
02-Sep-2016 15:50 CET by Kyung Seo
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Can't Decide
See comment of 1st round.
04-Sep-2016 14:45 CET by Anne Elsworthy
Comment attached to the vote of the user for Round 2 of year 2016. Voted:Can't Decide
In consulting with mortality colleagues there is concern that z codes cannot technically be used for underlying cause of death and this is something that should be captured if for example it leads to depression and suicide
28-Sep-2016 16:48 CET by Lori Moskal
Updated proposal
Notes and indexing have been added to this proposal.
28-Sep-2016 16:53 CET by Robert Jakob
completion
Definitions will be taken from ICD-11. Old terms will be added as index entries.
Regarding mortality: you don't die of it.
03-Jul-2017 12:59 CET by Ulrich Vogel
Comment attached to the vote of the user for Round 1 of year 2017. Voted:Can't Decide
Nothing to vote on.
05-Jul-2017 20:11 CET by Kristy Mabon
Comment attached to the vote of the user for Round 1 of year 2017. Voted:No
As per the updated rationale for change on 19 March 2017 - WHO has withdrawn the proposal.
13-Jul-2017 03:48 CET by Kyung Seo
Comment attached to the vote of the user for Round 1 of year 2017. Voted:Yes
Korean psychiatrists support this proposal.
16-Jul-2017 11:55 CET by Olafr Steinum
Comment attached to the vote of the user for Round 1 of year 2017. Voted:Can't Decide
Is the proposal withdrawn?
16-Jul-2017 15:57 CET by Anne Elsworthy
Comment attached to the vote of the user for Round 1 of year 2017. Voted:Can't Decide
Presumably this has been left here as an FYI and there is nothing to vote on?
17-Jul-2017 12:22 CET by Hazel Brear
Comment attached to the vote of the user for Round 1 of year 2017. Voted:No
Not applicable as proposal is withdrawn.
10-Aug-2017 12:28 CET by Ulrich Vogel
Comment attached to the vote of the user for Round 2 of year 2017. Voted:Can't Decide
Proposal has been withdrawn.
16-Aug-2017 21:55 CET by Kristy Mabon
Comment attached to the vote of the user for Round 2 of year 2017. Voted:No
Proposal was withdrawn March 19 2017
29-Aug-2017 09:43 CET by Anne Elsworthy
Comment attached to the vote of the user for Round 2 of year 2017. Voted:Can't Decide
It was my understanding that if proposals are withdrawn they are removed from the URC platform?
03-Sep-2017 23:29 CET by Donna Pickett
Comment attached to the vote of the user for Round 2 of year 2017. Voted:Can't Decide
Not clear on status - Has proposal been withdrawn?